Myth: Epilepsy is rare.
The fact is that 1 in 10 will have a seizure in their lifetime, and 1 in 26 will develop epilepsy at some point in their lifetime. 1 in 3 people know someone with epilepsy.
Fact: Based on 2014 population estimates and CDC reports there are an estimated 105,945 people in Utah who have had a seizure, and 11,000-27,500 people in Utah with active seizures.
Myth: All seizures are the same.
Myth: Epilepsy cannot be controlled.
Medication successfully treats 6 out of 10 people, but it’s complicated.
Fact: 70% of diagnoses have NO known cause.
Fact: Epilepsy can be fatal.
The Center for Disease Control Epilepsy Basics page on SUDEP points to a 2014 study that suggests each year there are approximately 1.16 deaths per 1,000 people with epilepsy. It can be calculated as an annual estimate that 13 to 32 people in Utah are victims of Sudden Unexpected Death in Epilepsy (SUDEP).
- SUDEP refers to deaths in people with epilepsy that are not caused by injury, drowning, or other known causes.
- Most, but not all, cases of SUDEP occur during or immediately after a seizure.
- The exact cause of SUDEP is not known
What can you do?
- Volunteer. Give hours to help out.
- Be a voice. Advocate for change.
- Share your talent, & Mentor others.
- Know how to respond to a seizure.